Wednesday, December 26, 2007

Caregiver guide: tips for caregivers of people next to Alzheimer's disease … from the National Institute on Aging

Tips for Caregivers


Caring for a person beside Alzheimer's disease (AD) at home is a difficult task and can become overwhelming at times. Each year brings new challenge as the caregiver copes with varying levels of potential and new pattern of behavior. Research has shown that caregivers themselves habitually are at increased risk for depression and illness, especially if they do not receive tolerable support from family, friends, and the community.


One of the biggest struggles caregivers facade is dealing with the difficult behaviors of the personage they are caring for. Dressing, bathing, eating--basic goings-on of daily living--often become difficult to deal with for both the person near AD and the caregiver. Having a plan for getting through the day can back caregivers cope. Many caregivers have found it loyal to use strategies for dealing with difficult behaviors and stressful situations. Following are some suggestions to consider when face with difficult aspects of compassionate for a person next to AD.


Dealing with the Diagnosis


Finding out that a loved one have Alzheimer's disease can be stressful, frightening, and overwhelming. As you begin to thieve stock of the situation, here are some tips that may help:


* Ask the doctor any question you have in the region of AD. Find out what treatments might work best to alleviate symptoms or address behavior problems.


* Contact organizations such as the Alzheimer's Association and the Alzheimer's Disease Education and Referral (ADEAR) Center for more information nearly the disease, treatment options, and caregiving resources. Some community groups may bestow classes to teach caregiving, problem-solving, and regulation skills.


* Find a support group where you can share your inner health and concerns. Members of support groups often own helpful accepted wisdom or know of useful resources base on their own experiences. Online support groups make it possible for caregivers to receive support in need having to bestow home.


* Study your day to see if you can develop a routine that make things go more smoothly. If nearby are times of day when the individual with AD is smaller amount confused or more cooperative, plan your routine to make the most of those moments. Keep contained by mind that the way the character functions may change from time to day, so try to be flexible and mutate your routine as needed.


* Consider using adult sunshine care or respite services to lessen the day-to-day demands of caregiving. These services allow you to have a break while knowing that the creature with AD is anyone well care for.


* Begin to plan for the future. This may include getting financial and legally recognized documents in lay down, investigating long-term care option, and determining what services are covered by health insurance and Medicare.


Communication


Trying to communicate next to a person who have AD can be a challenge. Both version and being embedded may be difficult.


* Choose simple words and short sentences and use a gentle, at ease tone of voice.


* Avoid talking to the entity with AD resembling a baby or chitchat about the creature as if he or she weren't there.


* Minimize distractions and noise--such as the TV or radio--to help the individual focus on what you are saying.


* Call the personality by name, making sure you own his or her attention before speaking.


* Allow plenty time for a response. Be careful not to interrupt.


* If the being with AD is struggling to find a word or communicate a thought, kindly try to provide the word he or she is looking for.


* Try to frame questions and instructions in a positive course.


Bathing


While some people beside AD don't mind bathing, for others it is a frightening, confusing experience. Advance planning can help spawn bath time better for both of you.


* Plan the hip bath or shower for the time of day when the creature is most calm and agreeable. Be consistent. Try to develop a routine.


* Respect the reality that bathing is scary and discomfited for some people beside AD. Be gentle and respectful. Be long-suffering and calm.


* Tell the soul what you are going to do, step by step, and allow him or her to do as much as possible.


* Prepare in advance. Make sure you enjoy everything you need arranged and in the bathroom up to that time beginning. Draw the hip bath ahead of time.


* Be sensitive to the temperature. Warm up the room beforehand if called for and keep extra towels and a robe close by. Test the water heat before formation the bath or shower.


* Minimize safekeeping risks by using a handheld showerhead, shower bench, grab bar, and nonskid bath mat. Never leave the soul alone in the tub or shower.


* Try a sponge bath. Bathing may not be vital every day. A sponge hip bath can be effective between showers or baths.


Dressing


For someone who have AD, getting dressed presents a series of challenges: choosing what to wear, getting some clothes rotten and other clothes on, and struggling with buttons and zippers. Minimizing the challenge may make a difference.


* Try to enjoy the person capture dressed at the same time respectively day so he or she will come to expect it as sector of the daily routine.


* Encourage the creature to dress himself or herself to whatever amount possible. Plan to allow extra time so there is no pressure or rush.


* Allow the character to choose from a limited test of outfits. If he or she has a favorite outfit, consider buying several the same sets.


* Arrange the clothes in the directive they are to be put on to help the soul move through the process.


* Provide clear, step-by-step instructions if the person wishes prompting.


* Choose clothing that is comfortable, smooth to get on and sour, and easy to protection for. Elastic waists and Velcro enclosures minimize struggles near buttons and zippers.


Eating


Eating can be a challenge. Some ethnic group with AD want to drink all the time, while others own to be encouraged to protract a good diet.


* Ensure a hush, calm atmosphere for intake. Limiting noise and other distractions may back the person focus on the lunchtime.


* Provide a limited number of choices of food and serve small portions. You may want to tender several small meals throughout the afternoon in place of three larger ones.


* Use straws or cups next to lids to build drinking easier.


* Substitute finger foods if the person struggles near utensils. Using a bowl instead of a plate also may help.


* Have sound snacks on hand. To ignite eating, save the snacks where they can be see.


* Visit the dentist regularly to keep mouth and teeth in shape.


Activities


What to do all sunshine? Finding activities that the creature with AD can do and is interested in can be a dare. Building on current skills generally works better than trying to school something new.


* Don't expect too much. Simple happenings often are best, especially when they use current ability.


* Help the person obtain started on an activity. Break the hum down into small steps and praise the person for respectively step he or she completes.


* Watch for signs of agitation or frustration with an leisure. Gently help or distract the individual to something else.


* Incorporate activities the being seems to relish into your daily routine and try to do them at a similar time respectively day.


* Take ascendancy of adult light of day services, which provide various events for the person next to AD, as well as an opportunity for caregivers to gain acting relief from tasks associated near caregiving. Transportation and meals recurrently are provided.


Exercise


Incorporating exercise into the daily routine have benefits for both the person beside AD and the caregiver. Not only can it develop health, but it also can provide a eloquent activity for both of you to share.


* Think nearly what kind of physical events you both enjoy, probably walking, swimming, tennis, dancing, or gardening. Determine the time of daytime and place where this type of diversion would work best.


* Be realistic within your expectations. Build slowly, perhaps of late starting with a short stride around the yard, for example, since progressing to a walk around the block.


* Be aware of any discomfort or signs of overexertion. Talk to the personage's doctor if this happens.


* Allow as much nouns as possible, even if it means a less-than-perfect garden or a scoreless tennis contest.


* See what kinds of exercise programs are available surrounded by your area. Senior centers may enjoy group programs for people who wallow in exercising with others. Local malls commonly have walking clubs and provide a place to exercise when the weather is discouraging.


* Encourage physical activities. Spend time outside when the weather permit. Exercise often help everyone sleep better.


Incontinence


As the disease progresses, many race with AD start to experience incontinence, or the inability to control their bladder and/or bowels. Incontinence can be upsetting to the person and difficult for the caregiver. Sometimes incontinence is due to physical condition, so be sure to discuss it with the human being's doctor.


* Have a routine for taking the person to the bathroom and stick to it as closely as possible. For example, hold the person to the bathroom every 3 hours or so during the hours of daylight. Don't wait for the soul to ask.


* Watch for signs that the person may own to go to the bathroom, such as restlessness or pulling at clothes. Respond suddenly.


* Be understanding when accident occur. Stay composed and reassure the person if he or she is upset. Try to hang on to track of when accidents come to pass to help plan ways to avoid them.


* To give support to prevent nighttime accidents, inhibit certain types of fluids--such as those beside caffeine--in the evening.


* If you are going to be out with the party, plan ahead. Know where restrooms are located, and own the person wear simple, easy-to-remove clothing. Take an extra set of clothing along in shield of an accident.


Sleep Problems


For the exhausted caregiver, sleep can't come too soon. For oodles people near AD, however, nighttime may be a difficult time. Getting the person to move about to bed and stay there may require some finance planning.


* Set a quiet, serene tone in the evening to incite sleep. Keep the lights dim, eliminate loud noise, even play soothing music if the person seem to enjoy it.


* Try to hold on to bedtime at a similar time each evening. Developing a bedtime routine may aid.


* Encourage exercise during the day and cut-off date daytime napping.


* Restrict access to caffeine late within the day.


* Use hours of darkness lights in the bedroom, lecture theatre, and bathroom if the darkness is frightening or disorienting.


Hallucinations and Delusions


As the disease progresses, a character with AD may experience hallucination and/or delusions. Hallucinations are when the individual sees, hear, smells, tastes, or feel something that is not near. Delusions are false beliefs from which the person cannot be dissuaded.


* Sometimes hallucination and delusions are a sign of a physical sickness. Keep track of what the person is experiencing and discuss it beside the doctor.


* Avoid arguing with the soul about what he or she see or hears. Try to respond to the inner health he or she is expressing, and provide reassurance and comfort.


* Try to distract the person to another topic or pursuit. Sometimes moving to another room or going outside for a walk may minister to.


* Turn off the TV set when violent or disturbing programs are on. The entity with AD may not know how to distinguish television programming from sincerity.


* Make sure the person is past the worst and does not have access to anything he or she could use to injure anyone.


Wandering


Keeping the person undamaging is one of the most important aspects of caregiving. Some family with AD own a tendency to journey away from their home or their caregiver. Knowing what to do to limit wandering can protect a being from becoming lost.


* Make sure that the person carry some kind of designation or wears a medical bracelet. If he or she get lost and is unable to communicate amply, this will alert others to his or her identity and medical condition.


* Keep a recent photograph or videotape of the person beside AD to assist police if the person become lost.


* Keep doors locked. Consider a keyed deadbolt or an optional lock up high or down low on the door. If the soul can open a lock because it is comfortable, a new latch or lock may lend a hand.


* Be sure to secure or put away anything that could produce danger, both inside and outside the house.


Home Safety


Caregivers of folks with AD regularly have to look at their homes through alien eyes to identify and correct safety risks. Creating a protected environment can prevent many stressful and hazardous situations.


* Install secure locks on adjectives outside windows and doors, especially if the individual is prone to wandering. Remove the locks on bathroom doors to prevent the person from accidentally locking himself or herself in.


* Use childproof latch on kitchen cabinets and anyplace where on earth cleaning supplies or other chemicals are kept.


* Label medications and keep hold of them locked up. Also make sure knife, lighters and matches, and guns are secured and out of realize.


* Keep the house free from clutter. Remove scatter rugs and anything else that might contribute to a fall down. Make sure lighting is good both inside and out.


* Consider installing an automatic shut-off switch on the stove to prevent burns or fire.


Driving


Making the conclusion that a person near AD is no longer safe to drive is difficult, and it desires to be communicated carefully and sensitively. Even though the being may be upset by the loss of independence, safekeeping must be the priority.


* Look for clues that safe driving is no longer possible, including getting lost in decipherable places, driving too fast or too slow, disregarding traffic signs, or getting angry or confused.


* Be sensitive to the personality's feelings more or less losing the ability to drive, but be firm contained by your request that he or she no longer do so. Be consistent--don't allow the person to drive on "righteous days" but forbid it on "bad days."


* Ask the doctor to sustain. The person may vista the doctor as an "authority" and be willing to stop driving. The doctor also can contact the Department of Motor Vehicles and request that the being be reevaluated.


* If necessary, purloin the car key. If just have keys is substantial to the person, substitute a different set of key.


* If all else fail, disable the car or move it to a location where on earth the person cannot see it or gain access to it.


Visiting the Doctor


It is esteemed that the person beside AD receive regular medical care. Advance planning can abet the trip to the doctor's office walk more smoothly.


* Try to schedule the appointment for the personality's best time of day. Also, ask the organization staff what time of day the bureau is least crowded.


* Let the organization staff know in credit that this person is confused. If nearby is something they might be able to do to craft the visit turn more smoothly, ask.


* Don't tell the being about the appointment until the daytime of the visit or even shortly since it is time to go. Be positive and matter-of-fact.


* Bring along something for the individual to eat and drink and any amusement that he or she may enjoy.


* Have a friend or another domestic member dance with you on the trip, so that one of you can be near the person while the other speaks next to the doctor.


Coping with Holidays


Holidays are bittersweet for frequent AD caregivers. The happy memories of days gone by contrast with the difficulties of the present, and extra demands on the dot and energy can come across overwhelming. Finding a balance between rest and commotion can help.


* Keep or change family traditions that are earth-shattering to you. Include the person next to AD as much as possible.


* Recognize that things will be different, and own realistic expectations in the order of what you can do.


* Encourage friends and family to look in. Limit the number of visitors at one time, and try to rota visits during the time of sunshine when the person is at his or her best.


* Avoid crowds, change in routine, and strange surroundings that may basis confusion or agitation.


* Do your best to enjoy yourself. Try to find time for the holiday things you resembling to do, even if it means asking a friend or line member to spend time beside the person while you are out.


Visiting a Person near AD


Visitors are important to ancestors with AD. They may not other remember who the visitors are, but basically the human connection have value. Here are some planning to share with someone who is planning to drop by a person beside AD.


* Plan the visit at the time of the afternoon when the person is at his or her best. Consider bringing along some considerate of activity, such as something au fait to read or photo albums to look at, but be prepared to skip it if necessary.


* Be cool and quiet. Avoid using a loud tone of voice or conversation to the person as if he or she be a child. Respect the person's personal space and don't bring too close.


* Try to establish eye contact and call the creature by name to seize his or her attention. Remind the person who you are if he or she doesn't give the impression of being to recognize you.


* If the personality is confused, don't argue. Respond to the feelings you hear human being communicated, and distract the person to a different topic if obligatory.


* If the person doesn't endorse you, is unkind, or responds angrily, remember not to take it instinctively. He or she is reacting out of confusion.


Choosing a Nursing Home


For various caregivers, there comes a point when they are no longer competent to take comfort of their loved one at home. Choosing a residential care facility--a nursing home or an assisted living facility--is a big result, and it can be hard to know where on earth to start.


* It's helpful to accumulate information about services and option before the inevitability actually arises. This give you time to explore fully all the possibilities up to that time making a decision.


* Determine what services are in your nouns. Doctors, friends and relatives, hospital social workers, and religious organizations may be capable of help you identify specific services.


* Make a list of question you would like to ask the staff. Think in the region of what is important to you, such as commotion programs, transportation, or special units for ethnic group with AD.


* Contact the places that interest you and take home an appointment to visit. Talk to the control, nursing staff, and residents.


* Observe the way the facility runs and how residents are treated. You may want to drop by again unannounced to see if your impressions are alike.


* Find out what kinds of programs and services are offered for relations with AD and their family. Ask about staff training in dementia comfort, and check to see what the policy is about domestic participation contained by planning patient comfort.


* Check on room availability, cost and method of payment, and contribution in Medicare or Medicaid. You may want to place your identify on a waiting list even if you are ill-equipped to make an on the spot decision around long-term care.


* Once you hold made a decision, be sure you appreciate the terms of the contract and financial agreement. You may want to hold a lawyer review the documents near you before signing.


* Moving is a big tweaking for both the person next to AD and the caregiver. A social worker may be able to aid you plan for and adjust to the move. It is important to hold support during this difficult transition.

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